UCL are starting a trial of L-Serine in Hereditary Sensory Neuropathy Type 1 due to mutations in the SPTLC1 or SPTLC2 genes. An online patient infomation day is being held on the 18th April 2023 - details can be found in the attached documents - Flyer - Letter
The 22nd annual King's Neuromuscular Disease Symposium, Friday 26th January 2024, is now open for registration
The format will be a hybrid of face-to-face or online webinar. To encourage a live audience, we are offering free lunch for those attending in person (if pre-reserved). Registration will be the same cost whether you attend in person or virtually.
The venue will again be the stunning contemporary atrium and lecture theatre of the Fetal Medicine Research Institute at King’s College Hospital, London SE5 8BB, just next to Denmark Hill station.
09.00 – 09.25 Registration and tea/coffee
Session 1
09.25 – 09.30 Welcome from the organisers
09.30 – 10.00 Peripheral Neuropathy in Complex Genetic diseases: Approach to Diagnosis. Dr Alex Rossor,
St Thomas’ Hospital
10.00 – 10.30 Lymphoma, Paraproteins and Neuropathies. Dr Shirley D’Sa, UCLH.
10.30 – 11.00 Clinical and EMG guide to Spontaneous Motor Hyperexcitability. Dr James Bashford, KCL
11.00 – 11.25 Tea/coffee – Atrium
Session 2
11.25 – 11.55 Immunosuppression in Neuromuscular Diseases. Dr Aisling Carr,
Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery
11.55 – 12.35 Richard Hughes Lecture. Treatment of Neuropathic Pain. Prof Nadine Attal, Paris
12.35 – 13.05 Ulnar Neuropathy. Prof Simon Podnar, Ljubljana
13.05 – 13.50 Lunch – Atrium
Session 3
13.50 – 14.20 Physiotherapy Management of Neuromuscular Disorders. Jo Reffin, KCH
14.20 – 14.50 How to Interpret a Muscle and Nerve Biopsy Report. Dr Matthew Clarke, UCLH
14.50 – 15.15 Tea/coffee – Atrium
Session 4
15.15 – 15.45 Congenital Myopathies for the Adult Neurologist. Dr Anna Sarkozy, GOSH
15.45 – 16.15 Differentiating between Acquired and Genetic Myopathies. Dr James Lilleker, Manchester
16.15 – 16.25 Concluding remarks and Finish
Registration HERE
Organisers: Dr Rob Hadden, Dr James Burge, Dr James Bashford & Dr Ahmed Abbas
For Queries please contact our administrator: Ms Lai Tsang kch-tr.KNMS@nhs.net
The BPNS wish to facilitate setup of a new charity for peripheral neuropathy in the UK. There is no charity or association in the UK which supports people with all the many causes of peripheral neuropathy. Only a few specific causes of neuropathy have a UK charity, such as CMT-UK, GAIN and Diabetes UK. There is no UK charity to support idiopathic neuropathy, painful small fibre neuropathy (except general pain charities), brachial neuritis, carpal tunnel and entrapment neuropathies, chemotherapy neuropathy (except cancer charities), etc. Several people have come forward to assist with this and work is progressing to get the new charity up and running.
Members are encouraged to participate in a genome-wide association study of CIDP. Brief details can be found HERE
Following on from the successful BPNS instigated study of GBS linked to COVID-19 infection - whhich found no evidence that COVID is a significant trigger for GBS, te society is now encouraging a similar collaborative study of GBS following COVID vaccination (any vaccine). Details can be found in the members pages - HERE (login to access)
BPNS face-to-face outpatient policy
Agreed at BPNS AGM, 6 November 2020, amended 16 January 2021. The latest version of this policy can now be found in the new 'Policies' page under 'About' on the society home page.
The BPNS sees no reason for any patient with any peripheral nerve disease to avoid having any of the COVID-19 vaccines. A commentary on the topic my Mike Lunn can be found HERE. An information sheet giving the Societys official view for concerned patients is HERE.
BPNS members have contributed to an important study led by Stephen Keddie and Mike Lunn showing no association between COVID-19 and GBS. <Link>
The COVID-19 epidemic raises some questions for patients being treated for neuromuscular disease. The following documents and links may help:
Guidance regarding immunosuppression - (Mike Lunn / Queen Square)
A top quality international master class in peripheral nerve biology and disease based in Milan, Italy. The course involves five separate modules each of one week duration spread throughout a year.
The BPNS is delighted to announce the Richard Hughes bursaries in honour of Professor Richard Hughes, the first president of the BPNS. These comprise up to three travel bursaries a year, two to help fund a trainee to travel to the international Peripheral Nerve Society (up to £500 each) and one (up to £300) to attend the Spring meeting of the Association of British Neurologists (ABN).
2-yearly teaching course with lectures and small group teaching on the clinical neurology of peripheral nerve disorders
2-yearly teaching course with lectures and small group teaching on the clinical neurology of peripheral nerve disorders
All attendees please come to post-meeting dinner in Liverpool before your return home
If you are not a member, but would like to receive information regarding our meetings, please click here.