British Peripheral Nerve Society

Autumn Meeting and AGM 2024 IN PERSON

Start Date

End Date

Friday 20 Sep 2024 09:00 AM

Friday 20 Sep 2024 17:00 PM

Location

Frobisher Auditorium 2, Level 4, Barbican Centre, Silk Street London EC2Y 8DS

Details

Our usual mix of case presentations (neurology/neurophysiology) and invited lectures is of interest to trainees/consultants and nerve specialists/non-specialists alike. This years autumn meeting will be hosted by the Royal London Hospital & St Bartholemew's, held at the Barbican Centre, Forbisher Auditorium 2, in the heart of east London. The meeting is in person or virtual via Zoom, with pricing the same for both to reflect rising AV costs and encourage in-person attendance; pricing includes lunch and coffee/tea breaks for in-person attendees. There will be a dinner after the meeting at Apulia, Farringdon which is booked separately on the website (dinner listed as a separate meeting).

Guest Speakers

- Dr Filip Eftimov, Neurology Consultant, Amsterdam UMC

- Dr Prina Ruparelia, Respiratory Consultant, St Bart's Hospital

PAYMENT INFORMATION

Cost for associate members is £50, for ordinary members £70, and for non-members £90 for the meeting registration (lunch and refreshments included). Due to PayPal changes, our payment system through the website doesn't work, so instead register through the website 'for free' and then pay separately through PayPal, either by searching for Aisling.Carr@bpns22 through PayPal or more simply by typing PayPal.me/bpns22 into your web browser: you will then be asked to log in or sign up to PayPal before being asked to set the amount to pay Aisling Carr, our treasurer. If you do not have a PayPal account and do not wish to sign up, you can email aisling.carr@nhs.net to agree another option.

ON THE DAY

Location
The Frobisher Rooms are located on Level 4 in the main Barbican building and can be accessed by lift or stairs from Level G. Head towards Frobisher 4 for registration and coffee.

Address
Level 4,
Barbican Centre
Silk Street, London
EC2Y 8DS

Access instructions from Silk Street entrance

Wi-Fi details:

Network: Barbican Event

Password: BARBICAN1055

Menu

Please email stephen.keddie@nhs.net with dietry requirements by 10/9/24

Ginger and soya chicken, bean shoots and spinach

Roasted cauliflower and chickpea coconut curry (ve)

Steamed rice (ve)

Salads

Spicy Asian slaw, sesame dressing (ve)

Coronation Waldorf (ve)

Mixed leaf and herbs, lemon dressing (ve)

Desserts

Coconut panna cotta, mango salsa (v)

Kirsch and cherry chocolate torte (ve)

Abstracts (can change before the event)

Title	Lead Author	Status
Chemotherapy-induced unmasking of Cerebellar Ataxia, Neuropathy and Vestibular Areflexia Syndrome (CANVAS) in a pre-symptomatic individual with an RFC1 biallelic expansion.	Joshua Frost	Finished Version	View
Chemotherapy-induced unmasking of Cerebellar ataxia, Neuropathy and Vestibular Areflexia Syndrome (CANVAS) in a pre-symptomatic individual with an RFC1 biallelic expansion.	Joshua Frost	Finished Version	View
Neuropathy in an acute onset multi-organ syndrome	Victor Jia Wei Zhang	Finished Version	View
Skin Deep	Joumana Freiha	Finished Version	View
Periaxin is a biomarker of peripheral nerve demyelination	Roberto Bellanti	Finished Version	View
A boy with vomiting	Chun Man (Bobby) LUI	Finished Version	View
Charcot-Marie-Tooth Disease 4C Presenting with CIDP-like Features: A Diagnostic Challenge, reporting five patients	Farzad Fatehi	Finished Version	View
Asymmetrical sensory ataxic neuropathy due to a novel genetic cause	Saif Haddad	Finished Version	View
The Importance of (not) Being Idle	Tim Lavin	Finished Version	View
Devastating cervical and lumbar plexopathies in a patient with cystinosis, diabetes, three paraproteins and a renal transplant	Alexander Rossor	Finished Version	View
Changing patterns of neurophysiology in a case of demyelinating peripheral neuropathy	Tina Ouharzoune Chetitah	Finished Version	View

Programme

Time	Type		Presenter
09:00	Registration	Registration and coffee. Disclosure statement: we are grateful to Alnylam, CSL Behring, Grifols, Argenx and Takeda for sponsorship towards the costs of running this meeting. Sponsors have had no input into the organization, agenda or content of this meeting.
10:00	Lecture	Welcome	President (Prof Rajabally) and local organiser (Dr Keddie)
10:10	Abstract	Devastating cervical and lumbar plexopathies in a patient with cystinosis, diabetes, three paraproteins and a renal transplant	Dr Erika Lam
10:25	Abstract	Skin Deep	Dr Joumana Freiha
10:40	Lecture	CIDP: any new treatments or only new paradigms?	Dr Filip Eftimov, Amsterdam UMC
11:20	Refreshment	Coffee
11:50	Abstract	Chemotherapy-induced unmasking of Cerebellar Ataxia, Neuropathy and Vestibular Areflexia Syndrome (CANVAS) in a pre-symptomatic individual with an RFC1 biallelic expansion.	Dr Joshua Frost
12:05	Abstract	Periaxin is a biomarker of peripheral nerve demyelination	Dr Roberto Bellanti
12:25	Abstract	A boy with vomiting	Dr Chun Man (Bobby) LUI
12:40	Abstract	Changing patterns of neurophysiology in a case of demyelinating peripheral neuropathy	Dr Tina Ouharzoune Chetitah
13:00	Refreshment	Lunch
13:50	Lecture	Every breath you take	Dr Prina Ruperalia, St Bart's, London
14:30	Abstract	Neuropathy in an acute onset multi-organ syndrome	Dr Victor Jia Wei Zhang
14:50	Abstract	The Importance of (not) Being Idle	Dr Tim Lavin
15:00	Refreshment	Afternoon Tea
15:30	Abstract	Asymmetrical sensory ataxic neuropathy due to a novel genetic cause	Dr Saif Haddad
15:45	Abstract	Charcot-Marie-Tooth Disease 4C Presenting with CIDP-like Features: A Diagnostic Challenge, reporting five patients	Dr Farzad Fatehi
16:00	AGM	The first 10 minutes will be held in remembrance of Drs Gareth Llewelyn and Dr Richard Orrell
17:00	Close

Queen Square Annual Update in Neuromuscular Disorders

This course will be held from Wednesday 28th May to Friday 30th May in the Clinical Neuroscience Lecture Theatre, Lower ground, 33 Queen Square, London WC1N 3B

DETAILS/REGISTRATION

Brain Fellowships

Applications are invited for 1 year fellowships funded by the Guarantors of Brain. These fellowships provide bridging salary support to early career clinicians based in the UK prior to obtaining a research fellowship. Further details can be found HERE

Hereditary Neuropathy Serine Trial

The Hereditary Sensory Neuropathy Serine trial (SENSE trial) ClinicalTrials.gov Identifier: NCT06113055

The Hereditary Sensory Neuropathy Serine trial (SENSE trial) is open to recruitment. This is a randomised double-blind placebo-controlled trial of L-serine in Hereditary Sensory Neuropathy type 1 (HSN1) due to variants in SPTLC1/2 gene.

This is a single-centre study being conducted at the National Hospital for Neurology and Neurosurgery, London UK. The Chief Investigator for this trial is Professor Mary M Reilly. If you have any affected patients who you think may interested in taking part then please invite them to contact the trial team for further information.

Recruitment will close August 2024.

New NHSE commissioning policies for rituximab and IVIg

We are pleased to announce that, largely due to the efforts of our president Prof Lunn, rituximab is now approved for treatment of IgM paraproteinaemic demyelinating peripheral neuropathy (anti-MAG phenotype, with or without anti-MAG antibodies): 1910-rituximab-for-treatment-of-PDPN-policy-v2.pdf (england.nhs.uk). Whilst we have hitherto been able to treat some patients with rituximab by sending them to a haematologist, this was not possible if the bone marrow showed insufficient evidence of underlying lymphoplasmacytic lymphoma. These patients can now be treated, regardless of bone marrow result, either by you or by your friendly haematologist, under the new commissioning guidance.
Also thanks to Prof Lunn (alongside non-neurology colleagues), the updated IVIg commissioning policy is now available: Commissioning-Criteria-Policy-for-the-use-of-Ig-Version-Finala.pdf (mdsas.com). Newly commissioned diagnoses of relevance to peripheral nerve now include acute autoimmune autonomic ganglionopathy, and neuromyotonia.
Finally, with thanks largely to the efforts of Dr Rinaldi in Oxford, rituximab can now be used for the treatment of autoimmune nodopathies (with nodal/paranodal antibodies): NHS England » Rituximab therapy for the treatment of nodal/paranodal antibody positive inflammatory/autoimmune neuropathy in adults and postpubescent children.

More news »

Meetings

Queen Square Annual Update in Neuromuscular Disorders

Brain Fellowships

Hereditary Neuropathy Serine Trial

New NHSE commissioning policies for rituximab and IVIg